Yaya Foundation for 4H Leukodystrophy - kflconversion12345

Data Collection Info Session Registration

Data Collection Info Session Registration

Registration is currently closed.

Join Us for a Data Collection Info Session!

Want to learn more about the 4H Data Collection Program? Join us for an info session on Friday, May 13th co-hosted by the Yaya Foundation and Rare-X, the data collection platform.

Whether you're 1 of 60 families already enrolled or are thinking about participating, we look forward to answering all of your questions - big and small - and sharing what we've learned about trends that have showed up in the data so far!  

We'll discuss the purpose and benefits of data collection, cover topics related to data privacy, and explain the importance of partnering with Rare-X.

Please register to attend!