DETAILS

Please register for an information session on the 4H/POLR3-related Leukodystrophy Data Collection Program launching Wednesday, June 16th! This is a key step on our research journey and one that we hope that all families affected by 4H will participate in, accelerating therapy discovery for 4H. This info session is hosted by the Yaya Foundation for 4H Leukodystrophy and we've invited rare disease Data Collection experts, RARE-X, to join us. Following your registration, you will receive meeting details including a Zoom link.